A bad start to the year.

It’s been a while since I’ve posted to my blog and I’m sorry about that. While I like sharing my work and thoughts with everyone, I often get busy and just forget about it. With then end of last year now behind us, I meant to get back to the blog, but I ran into one of the worst starts to a year I’ve ever had. While the first 2 weeks were great, the next 2 became a complete disaster medically with my Multiple Sclerosis (MS).

My wife, Margaret, and I attended a Gallery opening at Calumet Camera in Los Angeles of an excellent show of the work of Kathy Curtis Cahill entitled “Night Echoes” on Thursday evening, Jan 9. It was a great show and I enjoyed the evening even though my MS was definitely limiting my mobility. After the opening we headed out to Palm Spring to attend the Palm Springs International Film Festival.

The film festival was great we saw some excellent films, though we did catch a few that didn’t quite make it. We did get a chance to see a great film, “Finding Vivian Maier”, on the discovery of the excellent work of a nanny that had never shown her work but was discovered by a person that buys storage locker contents. After her death, a locker where her Negatives, Slides and undeveloped rolls of film were stored was auctioned off. If you get a chance, definitely see the film.

I had to use my scooter to get around Palm Springs and also get into and out of the theaters with the films. The previous year I could get around on my own, even though it may have been a little slow. This year I could definitely se a worsening of my MS. Even though I had to use the scooter, we had a great time at the festival and also enjoying Palm Spring. We returned home late Sunday Evening after 3 enjoyable days.

Monday morning I had a doctors appointment to gat a Shingles shot as I had had Chicken Pox as a child. The nurse informed me that I might have a small reaction to the shot. It would probably be in the form soreness in the area of the shot and a minor fever. The arm was definitely sore by that afternoon and I also started having a dry scratchiness in my throat. After dinner I realized it wasn’t a reaction to the shot, I was coming down with the flu, even though I had a flu shot a few months earlier.

I woke up about 3 am with a terrible fever, my Pj’s were soaking wet as I was sweating so hard with the fever. I just slept off and on the rest of the night before arising about 6 am. I definitely had the flu. I struggled through the day, I was definitely very weak and my legs didn’t work very well. It was difficult to even walk about the house. This was not unusual when I get the flu, a couple of days a weakness and being very tired before things started to return to normal.

I didn’t do much during the day and just sat in the living room that evening watching TV. About 9 pm decided I needed to go the bathroom and started to get out of my chair. As I got part way up my legs collapsed under me. I couldn’t move my legs at all. I couldn’t draw them up under me to get up. I drug myself forward with my arms but couldn’t do anything with my legs. Lying on my side, I could bring my legs up toward my chest, they just wouldn’t move. It took me over 20 minutes before I could get myself up off the floor. All I could think about was will I ever be able to use my legs again. I’ve never had anything like this happen to me before with my MS.

Now that I was up, I was able to slide my legs on the floor without actually picking them up. I was able to make it to bed and was hopeful that may be the legs would be better in the morning. In the morning the legs were no better than the night before. I contacted my neurologist and discovered he was out of the office with an injury. His nurse arranged an appointment with a colleague for a consultation early that afternoon, Tuesday, Jan 14.

I will continue the story in the next couple of posts.