A bad start to the year – Part 3.

From my last post, after having a good Monday following my steroid infusions, I thought everything was going to be fine. Waking up Tuesday morning and seeing that I now had the mumps, I knew that my feeling good was over after one day. I now knew that I would now have more than another week of feeling poorly.

For the next week I was extremely tired. I was sleeping 9-10 hours a night and taking 1 hour plus naps in the morning and afternoon. It seemed as if time was moving at half speed. During the first few days of the mumps, I took a steady diet of Tylenol to keep the swelling of my glands down and get rid of muscle aches.  After about 6-7 days I finally began to feel human again. It’s now been over 2 weeks since I started coming down with the flu and have my exacerbation of my MS.

Finally I’m feeling pretty good, though I still have a little cough from the flu left. My walking is better than it has been in 6 months, though it is still not very good. I can only cover short distances before the legs give out which is why I have a scooter. I’m now able to walk around the house without having to hold on to things to steady myself. I’m hopeful that things will not deteriorate to fast in the future.

Having the exacerbation with my MS was probably one of the scariest events in my life. All I could see was that I was going to lose even more of my life. The prospect of loosing my mobility was something I don’t think I had ever really considered before, even though I knew it was a possibility. Here I was going to lose both my ability to drive and the ability to walk on my own. It is now something that I’m definitely taking as a future possibility.

So I’m now back to being able to resume my life and get back to the things that I want to do. I’m hoping to get back to working on my photography project. I think I’ve got a few more giants to photograph. Now that I’ve used all my bad luck for the year, the rest is going to be great.

One thought on “A bad start to the year – Part 3.

  1. I had my first metallic taste of a srtioed infusion just yesterday at my MS center and am sitting on pins and needles waiting for the visiting nurse to schedule my home treatment. I got about 2 hours of sleep last night and while my eyes are burning due to lack of sleep, I can’t possibly nap, they may call any minute and I’m still wired What medication are you on. I haven’t read your entire blog yet but will.

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